Blog Posts

Anissa’s Story – Post #45 – Every Rose Has Its Thorns…

Ten years ago, while Anissa was going through a difficult time of severe seizure activity, the following revelation was given concerning my “focus”:

AS YOU GAZE UPON THIS MAGNIFICIENT

PINK ROSE, DO YOU SEE THE THORNS OR

THE BEAUTY OF THE PETALS?

People who know about the growth of a rose can look

at the thorns and tell the condition of the weather while the rose was springing forth ~ whether it was a dry or wet season.

The same principle can hold true as one meditates upon the seasons of an individual’s life.

 

ODE TO ANISSA G. LAWYER

(Inspiration given to Anissa’s mother)

June 15, 2008

Like the rose, my Anissa, seems the story of your life,

Though plagued forty-plus years with thorns of strife.

As fragile as rose petals ~ pink and soft to the touch;

 Then seizures erupted; alas, no medical cure for such.

But the day comes forth when a trumpet shall sound

Of God’s voice from Heaven causing you to abound!

‘Rise up, my fair one…come,’ and with the birds sing,

Ever filling the earth with praises, gloriously to ring.

Free at last to run ~ as you recall those past scenes,

Of walking on beaches, and in lush valleys so green.

Never again shall limits to love’s fragrance be closed

You’re out of the wilderness, able to bloom as a rose.

 

The Word of God reveals how Jesus kept a positive focus and how we are to look to Him as our example in struggling times:  “… and let us run with patience the particular race that God has set before us.  Keep your eyes on Jesus, our leader and instructor. He was willing to die a shameful death on the cross because of the joy He knew would be His afterwards, and now He sits in the place of honor by the throne of God.  If you want to keep from becoming fainthearted and weary, think about His patience as sinful men did such terrible things to Him. After all, you have never yet struggled against sin and temptation until you sweat great drops of blood.”  Hebrews 12:1-3 TLB

Upon reviewing the previous Blog Posts in sharing the story of Anissa’s life, I stand amazed as to how many times a messenger of Satan was sent to buffet my faith.  The many seizures continued to be “a thorn in the flesh,” yet my strength was made perfect in weakness – similar to what the Apostle Paul wrote about in 2 Corinthians 12:7-9.  We are overcomers – only because of His Excellent Grace!

 

(On the next Blog Post of Anissa’s story, it is my hope to have several videos of her for others to better understand what kind of seizures she has experienced.)

Note:  Give Glory to God by sharing your testimony of His Excellent Grace on our Guest Post.  Submit your story to blawyerlogos@bellsouth.net or mail to Logos Life & Light Foundation, Inc., P.O. Box 1732, Ormond Beach, FL 32175.  Your story will be edited and returned to you for approval before Posting.   

 

To contact Anissa’s mother email blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

 

 

Guest Post – Experiencing God’s Grace . . . by Tom Winslow

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About this time last year, 2017, while in Pensacola, Florida, I became extremely ill after eating dinner.  My wife asked me if I wanted to go to the Emergency Room, knowing I would always say: “No way!”  But to her surprise, I said, “Yes!”  Not really knowing how sick I was, my family rushed me to the hospital.

Upon entering the E.R., while they started examining me, my blood pressure fell to 50/30.  The pain was so great that I passed out. A lot of what went on after that I did not remember, but I did recall having an Ultra Sound and being put into the MRI tube for a scan.  I was diagnosed with a condition called pancreatitis.

I was pretty well out of it for a couple of days and did not remember the family and friends who visited me, except my wife, Barbara.  One afternoon, Rude’, a friend from many years before, who helped us get our ministry building into decent looking order, came into my room and said he was there to pray for me.

When you have been so sick for those couple of days before, I was ready for healing of my body.   How God works for us is sometimes extraordinary. Rude’ is from Louisiana, and just happened to be in Pensacola visiting at the time.    

“Now there was in Damascus a believer named Ananias.   The Lord spoke to him in a vision … ‘Go over to Straight Street and find the house of a man … He is praying to me right now, for I have shown him a vision of a man named Ananias coming in and laying his hands on him so that he can see again!”  So Ananias went over and found Paul and laid his hands on him and said, ‘Brother Paul, the Lord Jesus, who appeared to you on the road, has sent me so that you may be filled with the Holy Spirit and get your sight back.’  Instantly (it was as though scales fell from his eyes) Paul could see, and was immediately baptized.  Then he ate and was strengthened.” Acts 9: 10-12, 17-18 TLB

We know that the Lord sent Rude’ with the Anointing to pray for me that afternoon.  I believe that prayer started me on the way to recovery. I was very thankful for the many prayers that had been sustaining me prior to his visit and the care I received at Sacred Heart Hospital.  I know that Doctors promote healing, but it is God who is the Healer. His Excellent Grace is sufficient for us when we need it the most – of which I am very thankful!

— Tom Winslow

 

Anissa’s Story – Post #44 – A Steady Diet Of Keeping The Balance…

Gods invitation

While experiencing various trials and errors for control of seizure activity in Anissa during the past year, it also brought more researching on my part.  As occurred in earlier years when the doctor prescribed a higher dose of the anti-seizure drug, Keppra, it happened again. There were more seizures, along with profuse urination, confusion and panic attacks.  Also, I discovered that Tegretol, which Anissa had taken since her teen years, and Banzel for seven years, are reported to cause atrophy of the cerebellum.

At the beginning of January, 2018, my hopes arose when Anissa had no seizures for six days, then wham-o, they returned with a vengeance!  At the end of the month, she was attacked with a viral flu that settled in her sinuses and bronchial area. On the first day of the attack, she experienced 16 hard seizures, but for the next 10 days Anissa had no sign of any – her longest period to be free in the past 25 years.

   No matter how much coughing, sneezing, congestion, lack of sleep, off schedule eating, etc., she never had even a symptom of a seizure.  To my way of thinking, I believed a miracle was taking place and she could be free for a lifetime – until the violent seizures returned. Upon discussing the situation with several doctors, there could be a scientific explanation.  When a virus invades a system, the brain is not exempt from an alteration of the chemical balance. In Anissa’s case the effect was positive. But, like the doctors said, who wants a viral flu to in turn get only a temporary reprieve of seizures!  While I agree, it certainly was a great help to have her free of seizures during that time of sickness. My faith seems to be stronger as a result of that experience.

“For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.”  Ephesians 2:10 NIV

The latter part of March, I began supplementing Anissa’s diet with Beta Hydroxybutyrate (BHB), a Ketone Powder that could hopefully get her body into a state of ketosis.  Since she was never able to tolerate the high fat, low-carbohydrate Ketogenic Diet, nor withstand long periods of fasting which could induce ketosis, this supplement seemed ideal.  BHB salts has 12,000mg in one scoop, composed of Sodium beta-hydroxybutyrate 1190mg, Calcium beta-hydroxybutyrate 690mg and Magnesium beta-hydroxybutyrate 315mg.  All of the ingredients seemed perfect for Anissa’s optimum health.  It has been noted that Beta Hydroxybutyrate can cross different important barriers to be able to be turned into energy at all times.  One of those barriers is the brain, which seems to know to let it in, creating a heightened mental acuity.  Whether ketosis is taking place can be checked by using special urine test strips such as Ketostix.  Also, the breath may have an acetone odor.    

Just two weeks after Anissa began taking the supplement, a news bulletin was published by the Citizens United for Research in Epilepsy.   It stated:  “Thomas Sutula, M.D., Ph.D., and his team found that the administration of 2-Deoxy-D-Glucose (2DG), following a traumatic brain injury can significantly reduce the subsequent development of post-traumatic epilepsy in a rodent model.”  Since Anissa has experienced so many blows to the head due to seizures, I researched the composition of 2DG to compare it with the BHB supplement.

Basically, they seemed identical in performance.  It let me know that I was on the right track in the time of experimentation with my daughter.  After being on the BHB for one week, she had LAB Testing done.  It was perfect – first time ever since she was born.  Seizure activity remained but the duration of the worse kind that lasted 9 to 12 minutes was shortened, lasting 2 to 3 minutes.  I kept her on the BHB supplement for just two months.   Hopefully, the positive change will remain stable until God fully perfects Anissa’s brain from ALL seizure activity by His Excellent Grace!

Note:  Now that I am in a waiting period with Anissa, it’s a perfect time to share your personal testimony of His Excellent Grace on our Guest Post for others to see.  Glorify God!

Submit your story to blawyerlogos@bellsouth.net or mail to Logos Life & Light Foundation, Inc., P.O. Box 1732, Ormond Beach, FL 32175

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

Anissa’s Story – Post #43 – High Hopes Thru Many Trials…

Medical marijuana (cannabis – CBD) was a controversial subject throughout 2014 in the state of Florida.  Since Anissa’s condition complied with the Doctrine of Medical Necessity, it was a year of experimenting with various strains of cannabis.

 Always on the first day of dosage, she would experience a positive sign of mental alertness.  By the second or third day, negative signs occurred with greater seizure activity which altered the uplift and created a more depressed state.  Evidently, the THC, which causes the hype, must be as low as 1% compared to a higher percentage of CBD as is used in the Charlotte’s Web formula to successfully treat children suffering with uncontrollable seizures.  

The designated legal care-grower supplying Anissa with the CBD said that seeds of the Charlotte’s Web strain were nearly impossible to find.   It was his opinion that breeders knew the value of those seeds so were limiting the release of such. Finally, in 2016, Charlotte’s Web was approved by Florida’s Governor and made available in mid-March for Anissa when the seeded plant was secured from a grower in California.

 It was a trial and error treatment throughout many months – always hoping for a positive breakthrough! After several weeks, when her seizures began to escalate in number and velocity, it was evident that much research needed to be done concerning adults suffering with LGS (Lennox Gastaut Syndrome), as compared with a child or adolescent.  One thing I have learned from personal afflictions, as well as from people coming for prayer at our Clinic, is that compassion for others is a key to healing.

“What a wonderful God we have – He is the Father of our Lord Jesus Christ, the source of every mercy, and the one who so wonderfully comforts and strengthens us in our hardships and trials.  And why does He do this? So that when others are troubled, needing our sympathy and encouragement, we can pass onto them this same help and comfort God has given us.”

2 Corinthians 1:3-4 TLB

Since it had been over nine years when Anissa had an MRI, I decided to start the process in June, 2016, for the scan be done.  Because she had to be anesthetized for the MRI, it required a doctor who could admit her to the hospital, so this meant changing to another neurologist.  Finally, the scan was ordered for December 28th which revealed the following :  The MRI was with and without contrast – a multiplanar imaging of the brain before and following the intravenous administration of 6ml of gadolinium.  IMPRESSION: No significant change since 6/01/2007. No acute intracranial abnormality visualized. Redemonstration of severe, diffuse cerebellar and vermian atrophy.

In other words, severe atrophy of Anissa’s cerebellum and vermis is most likely the cause of her unsteadiness of balance and need for assisted help in walking.  The neurologist prescribed an increase of the anti-seizure drug, Banzel (rufinamide), to 1200mg daily. The total number of various seizures that she experienced during that year was 1,113.  Absence seizures were not taken into account, but the Jackknife-Tonic-Psychomotor-Myoclonic totaled 1427  – which are the most violent with an increase in velocity, lasting 9 to 12 minutes duration.  

After being on the increase of Banzel for six months, uncontrollable seizures, one to two minutes apart, plus a grand mal erupted on June 30, 2017.  For the first time of Anissa’s life, she had to be transported by ambulance to the hospital where she was given an injection of Ativan. Upon discovering a dangerously low sodium level, due to the increase of Banzel, she received only saline solution with meds for several days, which also included 500mg Keppra (levetiracetam).  Anissa remained in a semi-coma state for several days but on the fourth day she came alive and was able to take pureed food by mouth.  She returned home on July 3rd and three days later, celebrated her 50th birthday – a Jubilee.  God’s timing is always perfect!  What a blessing it was to have my grandson come early for the Daytona 400 races.  He was a great help when the ambulance came for Anissa, as well as running errands while I stayed at the hospital.  Praise be to the faithfulness of our Lord and His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

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Anissa’s Story #42 – Times May Change – But God’s Word Remains…

The victories seen in 2012 had more to do with the ministry rather than Anissa, but both are intertwined.  Having experienced over 821 seizures that year, with 407 being the worse destructive kind, each lasting four to ten minutes, the stress factor hit a record high.  The amazing thing is how well she always looked and stayed physically strong — yet my hope for a miraculous change remained!

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Hopes for a change in 2013 concerning Anissa were high.  It began in January when I first learned about Fuel For Thought (MCT-Coconut Oil), which was proven to raise Ketones.  Anissa began two ounces daily but in order to keep a 24-hour balance, the dosage needed to be increased to four times daily.  In doing this, she developed a severe digestive disturbance and the dose had to be lowered to once a day. Even so, there remained a change in her alertness and recognition, as well as less allergies.  The autism characteristics were also miraculously altered, but no change in the seizure activity.

With the greater challenge in caring for Anissa 24/7, the Prayer Clinic open four days a week, and searching for a couple to oversee our retreat center, I was ready for the joyous breakthrough that came forth in June.  It was a definite answer to our fervent prayers when contact was made with Tom Winslow, an ordained minister for over 20 years, and wife Barbara, a Registered Nurse.  Since they were Directors of Pensacola Healing Rooms for seven years and Regional Directors of the International Association Southeastern Healing Rooms, we thought they might know of a responsible couple to oversee our healing center.  When they could not recall anyone who might be interested, I said, “What about you two?”  Tom sort of laughed as he mentioned about their plate being already full.  But God had other plans! After a time of fasting, with prayer and a commitment to know and do the Lord’s will, it became evident the Lord was calling them to be our new Directors.  

“You have not chosen Me, but I have chosen you and appointed you that you should go and bear fruit, and that your fruit should remain, that whatever you ask the Father in My name He may give you.”

 John 15:16 NKJV  

Within a month’s time, I heard a news report concerning magnetoencephalography or MEG Scan — an imaging technique that identifies brain activity and measures small magnetic fields produced in the brain to pinpoint the source of seizures.  After receiving word that Florida Hospital for Children in Orlando had the MEG Scan and was opening its doors to adults suffering with seizures, Anissa at age 46, was accepted and evaluated.  Without hesitating, the neurologist said: “She needs a corpus colostomy!  It may not alleviate all seizures, but it could lessen the severity of them.”  I was very disappointed when he said the scan would only be used during the surgery and not prior to an operation.   When I responded that a corpus colostomy [also called “split brain”] operation was not considered in the past due to her combatant behavior, the doctor looked at Anissa and said:  “Well, she’s no more than a zombie now!”  Shocked to hear such words, I asked if he had looked at the video previously sent to him.  When he answered in the negative, the nurse presented the video to him. He became more irritated when his computer refused to work properly.  I offered my camcorder that was already set to view, just in case there was a mishap during the consultation. He said that it wasn’t necessary and instructed the nurse to answer any questions concerning an operation, then he quickly exited the room.  The nurse suggested more prayer before making a decision. The following week, Anissa experienced some very combative episodes, plus an entire day of tonic seizures – the type referred to by the neurologist that may not be alleviated by the surgery. I wondered if it was God’s way of showing how difficult it could be after such a surgical procedure?

“Do not be deceived, my beloved brethren.  Every good gift and every perfect gift is from above, and comes down from the Father of lights, with whom there is no variation or shadow of turning.  Of His own will He brought us forth by the word of truth, that we might be a kind of first fruits of His creatures.” James 1:16-18 NKJV

It was during that time period when CNN had a special report regarding Charlotte’s Web, a constituent of marijuana/hemp with less THC and higher CBD, being used to control seizures in children with LGS.  Chief Medical Correspondent, Dr. Sanjay Gupta, hosted the program with special guest, Dr. Alan Shackelford, a Harvard trained physician and one of the nation’s foremost experts on medical marijuana.  After seeing a video of Anissa’s seizures and viewing her medical records, as well as reading her story, Dr. Shackelford wanted to personally meet her. As I prayed to know God’s will concerning the request, the Holy Spirit led me to Isaiah 43:21 “This people have I formed for myself; they shall show forth my praise.”  That Word gave me great peace of mind that I was going in the right direction.

The visitation was set up by Consumer Law Services.   Their firm worked in collaboration with expert physicians and to assist patients in determining whether they are complying with the Doctrine of Medical Necessity.   It was important to have a valid legal defense before using medical marijuana, also known as cannabis/CBD. On Sunday, December 15, 2013, Dr. Shackelford made a “house call”, along with the legal team, to see Anissa.   The doctor’s attitude greatly impressed me as to how he listened very carefully to every detail in my answering of his questions. Before the visit ended, I was privileged to pray with them and give each one a copy of Isaiah 43:21.   Since that day, it is my understanding that this doctor spends much of his time in Israel, working with a pharmaceutical company concerning the production of cannabis/CBD.  Their visit greatly encouraged me to pursue that open door to try the CBD with Anissa. In my heart, the faith I had was in the Lord’s pathway of healing for Anissa and not the CBD, so any success would depend upon the power of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

  

 

 

 

 

Anissa’s Story – Post #41 – Life Is Not Free Of Storms. Trusting God Through It All…

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While Anissa’s brother was visiting us in July, 2010, it finally happened that he was present to video tape one of her most dangerous type of seizures.  Upon showing the video to her medical doctor, he commented: “If she was in a nursing home type facility, within one week she would wind up in the hospital.”  Simply because they would not have the necessary means to care for her one-on-one unless she was bedridden.  Also, Anissa’s communication skills are seldom verbal unless she yells and then the caregiver must decipher what her actions mean.  The danger is greatest while walking or even in a wheelchair, due to her legs, arms and torso thrusting hard in opposite directions.

Another new drug, Vimpat (lacosamide), was prescribed.  The first week of that medication seemed to make Anissa more alert.  But after several weeks, tremors caused her head to shake so violently that food would fling out of her mouth and the seizures became more intense, so the drug was stopped immediately.

It was in 2011 that Anissa’s beloved neurologist for over thirteen years was no longer able to see her.  So, to prevent the long trips to Melbourne, a neurologist in our locality seemed a wise choice; whereas, his first order was to have an EEG done.

To obtain an accurate brain wave test required that she receive no extra medication that would put her to sleep.  Because of the constant head tremors, the technician had a very difficult time getting the wires glued to Anissa’s head and wanted to forego the test, which I totally understood the negative response.

It was then I mentioned how prayer can change things.  I invited the technician to join with me in prayer, but she let me know very quickly, saying, “I do not believe in that stuff!”  Knowing the importance of the EEG, I believed God for a miracle, so I asked if she would please proceed with the test while I would quietly sing to Anissa — she reluctantly agreed.  As I was praying and softly singing in Anissa’s ear, a very deep sleep came upon her, amazing the technician, as well as myself!

“And Jesus looking at them said, ‘With men it is impossible, but not with God; for with God all things are possible.’”  Mark 10:27 NKJV   

The completed report read as follows:  This is a diffusely slow abnormal tracing.  There are multiple spike discharges seen throughout the tracing.  This seemed to be fairly symmetrical. These occurred on every page of the tracing, spike and spike slow wave activity, which had the frequency of about two per second.  Three minutes of hyperventilation was not performed. IMPRESSION:  Severely abnormal EEG, consistent with a generalized seizure disorder.  The neurologist’s interpretation:  “The report shows that seizures in her brain never stop and unless medical research discovers a new medication, there is no answer!”  

Several months prior to the EEG, due to the hard clenching of her jaws during violent seizures, Anissa had to have three more teeth extracted.   With only front teeth remaining, that meant she must have puree or soft foods at mealtime.

As the challenges became greater, so did God’s Grace!  He gave me the courage to drive to North Carolina for my granddaughter’s wedding.  It was a four-day round trip and since restaurants were not an option, I had to pack enough of Anissa’s special foods to last.  Also, it required taking her bath lift plus other essentials that filled up every space in the car. The good Lord made the way for a very special friend of mine who lived in that area, along with her Pastor, to stay with Anissa while I attended the wedding and a short time at the reception.   

It was wonderful to see the many relatives and later that evening to visit with family at my son’s home. Except there be a change for the better concerning my daughter, it’s not a trip that I desire to repeat! The perfect weather and Anissa’s love to travel eased the stress considerably, for which I give thanks and can only attribute the blessings to His Excellent Grace!  

 

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealing retreat.org.

Anissa’s Story – #40 – Extreme Faith…

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Many obstacles had to be overcome and battles won during the recovery of Anissa’s broken clavicle.  But a light began to shine out of the darkness as the new anti-epileptic drug, Banzel (rufinamide), was prescribed on February 13, 2009. Once the drug was increased to 800mg daily, a definite positive change became evident as nocturnal seizures stopped and Anissa’s sleep was peaceful.    

Increasing Banzel to the recommended dosage of 3200mg daily caused stomach distress and had no extra benefits, so the lower dose was resumed.  In general, her cognitive ability improved even though the devastating type seizures still continued. In June, the neurologist ordered Frisium (clobazam) for Anissa on a compassionate drug basis, as it had to be purchased from the UK/Canada.  Hopes were soon dashed after several doses when she became so hyped with violent shakes and increased tremors, yet, no change in seizure activity.

Upon the annual visit to Anissa’s neurologist in December, he was able to view the various seizures experienced by her that had been recorded onto a DVD.  The doctor made the comment of never before seeing such a sequence of seizures in one episode. He said they might be Behavioral Seizures, involving the temporal and frontal lobe of the brain, which could only be determined if Anissa had an EEG at the time of the episode — and that was not possible.

In the midst of the chaotic times, prayer was our sustaining factor.  It was early summer when I had heard the voice of God say: “I want you to establish a Prayer Clinic in Ormond Beach.”  My first thought was, “What is a Prayer Clinic?”  Such a new assignment would have been overwhelming for me, except, at that time, we were blessed to have responsible Directors overseeing our ministry’s healing retreat center in O’Brien, Florida.  

After locating the building and signing a lease for the Clinic, I returned home and immediately went into prayer, confessing my stand of faith unto the Lord, saying:  “As You were with Moses, You have also promised to be with me.  You told Moses exactly how to furnish the tabernacle for your Glory.  I have no idea what You want for the Prayer Clinic, nor how to furnish it.  Your Word says that You are the same yesterday, today and forever, so I await your guidance, in Jesus name.  Amen.”

Instantly, I heard:  “six stack chairs, lavender blinds, table with lamp, three lounge chairs, bookcase, desk, TV stand.”  As I pictured the size of the rooms, I wondered where three lounge chairs could possibly go — but everything fit perfectly — exactly what was needed!

On the first day when the Clinic opened for prayer, Anissa was totally out of control with non-stop loudness of voice — regardless of our prayers and efforts to appease her!  Afterwards, I determined in my heart to shut the doors and never go back! Compared to the stress of that situation, I did not care about the loss of money, contract or reputation — but my Heavenly Father did care!

The Spirit of the Lord came strongly upon me and said:  “Return with your daughter at your side.  I will take care of her.”  After that day, for six years, Anissa slept soundly at the Clinic in one of the lounge chairs, Tuesday thru Friday, 10 am to 2 pm, regardless of the lights and noise around her.  By the end of the sixth year, she began having episodes of uncontrollable seizures which signaled to me that there would be a change – and there was!

“The Lord hath done great things for us and we are glad … Those who sow in tears shall reap in joy.  He who continually goes forth weeping, bearing seed for sowing, shall doubtless come again with rejoicing.”  

Psalm 126:3, 4-5 NKJV

Looking back, I have learned that if God did not lift His hand of Grace at times, we may never know how merciful and powerful He truly is!   The awesome ways we witnessed Divine intervention take place at the Prayer Clinic during those six years certainly helped to build our faith!!  It was definitely a year of change where weeping was for many a night, but more joyful times also abounded because of His Excellent Grace!!!

To contact Anissa’s mother email blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org