Anissa’s Story – Post #46- What Is Lennox Gastaut Syndrome?

What is Lennox Gastaut Syndrome (LGS)?  Through Anissa’s story, I have attempted to inform others how this syndrome can affect individuals, as well as their family and caregivers.  LGS is diagnosed when there is a mixed seizure pattern, especially if combined with a degree of developmental delay or intellectual impairment.  

Since there are so many different kinds of seizures and epilepsy, seeing is better than reading when it has to do with LGS.  But it is also very difficult to video tape some of the most dangerous kinds, or to even have a camera handy at all times. The video that I am posting of Anissa shows the more dangerous type which was taped in 2016 after a trial month of being on the medical marijuana (CBD).

Click below to watch the seizure

Anissa Seizure

Without any warning, she jackknifes (also called drop or atonic), then goes into a tonic phase causing her legs to go out straight.  The legs are stiff as a board and cannot be bent until the phase is completed. Her arms go into “fencing” motions and the torso twists uncontrollably in various directions, which have been diagnosed as psychomotor and myoclonic.  The total number of this kind of seizure that Anissa experienced during that year was 427, plus 640 of other less violent types. Absence seizures were not taken into account.

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Anissa just celebrated her 51st birthday earlier this month.  Going through the post-menstrual cycle with hormonal changes is creating a new challenge.  There seems to be more erratic types of seizures, so we take each day as it comes. Jesus told His disciples to not be anxious and worried about their lives . . .

“Look at the birds of the air, for they neither sow nor reap nor gather into barns; yet your heavenly Father feeds them.  Are you not of more value than they? Which of you by worrying can add one cubit to his stature? But seek first the kingdom of God and His righteousness, and all these things will be added to you.  Therefore do not worry about tomorrow, for tomorrow will worry about its own things. Sufficient for the day is its own trouble.”

Matthew 6:26-27, 33-34 NKJV

I believe that we will succeed – but only by the power of His Excellent Grace!

To contact Anissa’s mother email her at blawyerlogos@bellsouth.net

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To take a virtual tour of the healing center go to http://www.wellspringhealingretreat.org

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