While experiencing various trials and errors for control of seizure activity in Anissa during the past year, it also brought more researching on my part. As occurred in earlier years when the doctor prescribed a higher dose of the anti-seizure drug, Keppra, it happened again. There were more seizures, along with profuse urination, confusion and panic attacks. Also, I discovered that Tegretol, which Anissa had taken since her teen years, and Banzel for seven years, are reported to cause atrophy of the cerebellum.
At the beginning of January, 2018, my hopes arose when Anissa had no seizures for six days, then wham-o, they returned with a vengeance! At the end of the month, she was attacked with a viral flu that settled in her sinuses and bronchial area. On the first day of the attack, she experienced 16 hard seizures, but for the next 10 days Anissa had no sign of any – her longest period to be free in the past 25 years.
No matter how much coughing, sneezing, congestion, lack of sleep, off schedule eating, etc., she never had even a symptom of a seizure. To my way of thinking, I believed a miracle was taking place and she could be free for a lifetime – until the violent seizures returned. Upon discussing the situation with several doctors, there could be a scientific explanation. When a virus invades a system, the brain is not exempt from an alteration of the chemical balance. In Anissa’s case the effect was positive. But, like the doctors said, who wants a viral flu to in turn get only a temporary reprieve of seizures! While I agree, it certainly was a great help to have her free of seizures during that time of sickness. My faith seems to be stronger as a result of that experience.
“For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do.” Ephesians 2:10 NIV
The latter part of March, I began supplementing Anissa’s diet with Beta Hydroxybutyrate (BHB), a Ketone Powder that could hopefully get her body into a state of ketosis. Since she was never able to tolerate the high fat, low-carbohydrate Ketogenic Diet, nor withstand long periods of fasting which could induce ketosis, this supplement seemed ideal. BHB salts has 12,000mg in one scoop, composed of Sodium beta-hydroxybutyrate 1190mg, Calcium beta-hydroxybutyrate 690mg and Magnesium beta-hydroxybutyrate 315mg. All of the ingredients seemed perfect for Anissa’s optimum health. It has been noted that Beta Hydroxybutyrate can cross different important barriers to be able to be turned into energy at all times. One of those barriers is the brain, which seems to know to let it in, creating a heightened mental acuity. Whether ketosis is taking place can be checked by using special urine test strips such as Ketostix. Also, the breath may have an acetone odor.
Just two weeks after Anissa began taking the supplement, a news bulletin was published by the Citizens United for Research in Epilepsy. It stated: “Thomas Sutula, M.D., Ph.D., and his team found that the administration of 2-Deoxy-D-Glucose (2DG), following a traumatic brain injury can significantly reduce the subsequent development of post-traumatic epilepsy in a rodent model.” Since Anissa has experienced so many blows to the head due to seizures, I researched the composition of 2DG to compare it with the BHB supplement.
Basically, they seemed identical in performance. It let me know that I was on the right track in the time of experimentation with my daughter. After being on the BHB for one week, she had LAB Testing done. It was perfect – first time ever since she was born. Seizure activity remained but the duration of the worse kind that lasted 9 to 12 minutes was shortened, lasting 2 to 3 minutes. I kept her on the BHB supplement for just two months. Hopefully, the positive change will remain stable until God fully perfects Anissa’s brain from ALL seizure activity by His Excellent Grace!
Note: Now that I am in a waiting period with Anissa, it’s a perfect time to share your personal testimony of His Excellent Grace on our Guest Post for others to see. Glorify God!
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